Aina Millan Sánchez
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Aina Millan Sánchez

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Credential Verification

Issue date: June 6, 2025

ID: dbdbe9ea-7fa9-4a37-80eb-4eada4c76ab4

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EURORDIS - Rare Diseases Europe

EURORDIS – Rare Diseases Europe is a unique, non-profit alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 30 million people living with a rare disease in Europe.

Type

Training

Level

Intermediate

Format

Hybrid

Duration

5 months

Price

Free

Description

The EURORDIS Open Academy School on Medicines Research & Development aims to provide rare disease patient advocates with the knowledge and skills needed to become experts in medicines research and development.

Skills

Regulatory Affairs

clinical research

patient engagement

ethics in medicines development

health technology assessment

compassionate use

marketing authorisation

real world evidence