Issued to
Anne Hugon
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Credential Verification
Issue date: July 2, 2025
ID: 7cc89414-1396-4e7e-b326-b6ebefc44b21
Issued by
EURORDIS - Rare Diseases Europe
EURORDIS – Rare Diseases Europe is a unique, non-profit alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 30 million people living with a rare disease in Europe.
Type
Certification
Level
Intermediate
Format
Online
Duration
6 months
Price
Free
Description
The Navigating rare disease research: data, ethics, and AI in Europe online training has been developed in response to the growing need for advocates to understand and navigate the complexities of data management, ethical considerations, and the role of AI in rare disease research across Europe. Its primary objective is to equip participants with the knowledge and skills to effectively engage with and influence data-driven research initiatives in the rare disease community.
Skills
Data Access
Data Collection
Data Classification
Data Ethics
Informed Consent
data codification
registries
real-world data
GDPR
data protection
genetic data processing